The Caring Voice Coalition is a recommended resource offering outreach services that provide financial support, help with accessing health insurance, travel assistance, and educational materials individuals suffering from such rare chronic diseases as Huntington's disease, narcolepsy, idiopathic pulmonary fibrosis, and chronic pain.
The Caring Voice Coalition is easy to use and labeled clearly throughout. Users seeking assistance for specific diseases and conditions can quickly find applicable programs by clicking the "Helpful Resources" link, which allows users to apply to open programs as well as explore a collection of additional resources.
A streamlined homepage guides users through the site's content clearly and quickly. Sharp images and a clean design make this website attractive, simple, and engaging.
The website is very valuable for patients and caregivers affected by the 12 diagnoses covered on Caring Voice Coalition. Unfortunately, the Caring Voice Coalition is not always accepting applications for patient support, and the patient assistance programs often change, so users will need to check the website frequently for available opportunities.
The website has an active blog and community magazine that keep users up-to-date on what the Caring Voice Coalition is doing. The website helpfully designates which programs are accepting new applications. Information on the credentials of individual authors is not provided.
Easy to locate assistance programs
Clearly indicates programs that are not accepting new applications
Links to national websites for specific disease
New articles are posted at least once a week
Font can be hard to read against background on some pages
List of diagnoses covered is extremely limited
Available resources for each diagnosis is also limited
Blogs have a narrow scope
Sponsors / Affiliations:
Caring Voice Coalition, a national nonprofit charity organization established in 2003
GuideStar Gold seal of transparency (2017), Charity Navigator 4-Star Charity, NonProfitTimes Best Nonprofits to Work For (2017)
Blog, e-newsletter, videos, community magazine, patient stories