Highly Recommended

Hemophilia Foundation of America

The Hemophilia Foundation of America (HFA) is a highly recommended first-stop resource for patients and caregivers interested in learning about bleeding disorders, especially how to diagnose, treat, manage, and afford them. This website covers how bleeding disorders affect different population with links to educational articles, clinical trials, financial assistance, advocacy organizations, and more.

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Review Date: 3/2/2018

Scoring

Ease of Use

Aside from a small font, this website presents its content well. Categories contain a lot of diverse information but are still easy to browse. And the site's search bar is great for users seeking specific information.

Visual Design

Simple but effective visual design that could stand to utilize more images on its text-only pages.

Quality

The Hemophila Foundation of America offers high-quality information relating to all aspects of hemophilia and other bleeding disorders. In addition to brief overviews to this topic, visitors can also access information on financial assistance, navigating health insurance, local support, and more.

Credibility

There's a good deal of information about HFA on its website. Representing a national nonprofit that advocates for the bleeding disorder community, this website fulfills its mission to assist and educate interested parties. However, more work could be done to include author names and dates of publication/revision.

Pros

  1. Depsite a wealth of information, the site does not overload any single page too much information to ensure a comfortable browsing experience
  2. Provides clear introductions to bleeding disorders along with related topics like financial assistance, emergency preparedness, caregiving, clinical trials, etc.
  3. Ample multimedia resources like images, videos, infographics, and more to enliven the text
  4. Patients can blog about their own personal experiences with bleeding disorders and the various ways they cope with such difficulties
  5. Professional, well-maintained visual design that is both functional and intuitive

Cons

  1. Dates of publication/revision are missing from HFA's educational pages, as are author names

Profile

Sponsors / Affiliations: Hemophilia Federation of America, a nonprofit 501(c)(3) organization incorporated in 1994

Accreditations: None

Additional Features: Resource library, patient stories, blog, webinars, news

Languages: English, French, German, Hindi, Spanish

Contact: info@hemophiliafed.org

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