The Alpha-1 Foundation allows users to learn about alpha-1 antitrypsin disease, a genetic disease affecting the lungs and liver. The website covers testing and diagnosis, symptoms, treatment, and management. This nonprofit has strong advocacy roots and offers many resources for children, adults, medical professionals, and researchers.
Clear top-level navigation bar with subtopics that guide users easily between the site's various materials. Sub-subtopics, on the other hand, sometimes appear to be randomly chosen and ordered. Each page combines a mix of materials including brochures, videos, and other resources. The site's collapsible menus, large font, and engaging graphics make the text easy to read and browse.
Professional and consistently engaging visual design keep the reader invested in the reading experience. The site's color scheme is inviting as well. Overall the website features a great design that is both functional and attractive.
The website's materials are very important for those with alpha-1 disease and other interested parties. Resources here go into a good amount of depth and detail without overwhelming readers, yet the multimedia information is user-friendly as well. Unfortunately the website does not credit scholarly references for its materials, though this does not detract from the quality of the materials themselves.
The website does not cite its content authors/editors, nor does it provide dates of publication on materials other than news coverage and brochures. Some of the brochures feature dates that are more than two years old, but otherwise the site's materials appear to be up-to-date and reliable sources of information.
Content is organized well, easily understandable, and informative
Plenty of multimedia resources to educate all types of users
Covers virtually all aspects of alpha-1, from testing to transplantation
Some content may not be current since no dates are provided
Sponsors / Affiliations:
The Alpha-1 Foundation, a national nonprofit organization established in 1995
BBB-accredited charity, Charity Navigator 4-star charity, National Health Council Standards of Excellence Certification Program, GuideStar valued partner
Magazine, videos, patient information hotline, webinars, podcasts, "Find a Specialist" tool, support group, news, patient stories, online genetic counseling
English, French, German, Italian, Spanish, Portuguese, Swedish