Recommended

The Alpha-1 Foundation

The Alpha-1 Foundation allows users to learn about alpha-1 antitrypsin disease, a genetic disease affecting the lungs and liver. The website covers testing and diagnosis, symptoms, treatment, and management. This nonprofit has strong advocacy roots and offers many resources for children, adults, medical professionals, and researchers.

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Review Date: 9/18/2018

Scoring

Ease of Use

Clear top-level navigation bar with subtopics that guide users easily between the site's various materials. Sub-subtopics, on the other hand, sometimes appear to be randomly chosen and ordered. Each page combines a mix of materials including brochures, videos, and other resources. The site's collapsible menus, large font, and engaging graphics make the text easy to read and browse.

Visual Design

Professional and consistently engaging visual design keep the reader invested in the reading experience. The site's color scheme is inviting as well. Overall the website features a great design that is both functional and attractive.

Quality

The website's materials are very important for those with alpha-1 disease and other interested parties. Resources here go into a good amount of depth and detail without overwhelming readers, yet the multimedia information is user-friendly as well. Unfortunately the website does not credit scholarly references for its materials, though this does not detract from the quality of the materials themselves.

Credibility

The website does not cite its content authors/editors, nor does it provide dates of publication on materials other than news coverage and brochures. Some of the brochures feature dates that are more than two years old, but otherwise the site's materials appear to be up-to-date and reliable sources of information.

Pros

  1. Content is organized well, easily understandable, and informative
  2. Plenty of multimedia resources to educate all types of users
  3. Covers virtually all aspects of alpha-1, from testing to transplantation

Cons

  1. Some content may not be current since no dates are provided

Profile

Sponsors / Affiliations: The Alpha-1 Foundation, a national nonprofit organization established in 1995

Accreditations: BBB-accredited charity, Charity Navigator 4-star charity, National Health Council Standards of Excellence Certification Program, GuideStar valued partner

Additional Features: Magazine, videos, patient information hotline, webinars, podcasts, "Find a Specialist" tool, support group, news, patient stories, online genetic counseling

Languages: English, French, German, Italian, Spanish, Portuguese, Swedish

Contact: info@alphaone.org