Highly Recommended

The Michael J. Fox Foundation

The Michael J. Fox Foundation is highly recommended as a first-stop resource for Parkinson's disease information, including detailed information about medications used for treatment. The site's educational focus is wide-ranging and authoritative, providing materials that are easy to understand for many audiences. The breadth of material here makes it so that visitors can learn about this disease not only from a biological perspective, but also the many ways Parkinson's impacts a patient's daily life.

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Review Date: 9/19/2019

Scoring

Ease of Use

This is a great website to explore. Lots of information, and highly engaging. Unfortunately the homepage doesn't let on how user-friendly the site really is.

Visual Design

The page layout is easy to grasp, even though the information here seems endless. The font is on the small side, but it's more than made up for by ample use of sharp graphics and multimedia tools.

Quality

Parkinson's disease is explored in such depth and breadth here that users may find everything they're looking for. The site's first core value is to be "100% patient focused"—a promise they fulfill via comprehensive coverage of diagnosis/symptoms, daily living, healthcare issues, treatment, clinical trials, and so much more. Unfortunately, the detailed patient information provided is not referenced to show it is keeping up with current knowledge.

Credibility

This website can be a go-to for the latest developments and breakthroughs in Parkinson's research. The MJF Foundation has a team of medical writers and scientific advisory committee consisting of numerous scientific authorities in the field. Unfortunately, the informational pages do not credit authors/editors and there is no indication about how much control the advisory committee over the content. Clearly the site is attended to, since there is a plan for 2019, recent webinars and podcasts, and other activities documented in the site, but there is no indication how recently the patient information has been reviewed.

Pros

  1. Explores cutting-edge research advancements relying on peer-reviewed materials in their webinars and podcasts
  2. Offers a wealth of materials for lay audiences, health professionals, policymakers, and advocates
  3. Writing is easy to understand, even when dealing with complex topics like stem cell research
  4. Comprehensive blog containing professional information that is enhanced by videos, infographics, and other multimedia resources

Cons

  1. Cluttered homepage features a chaotic array of choices
  2. Authors/editors of the patient information content are not given
  3. The patient information is not backed by references

Profile

Sponsors / Affiliations: The Michael J. Fox Foundation for Parkinson’s Research, a 501(c)(3) nonprofit charity organization founded in 2000

Accreditations: BBB-accredited charity, Charity Navigator 4-Star charity, CharityWatch “Top-Rated” charity, GuideStar Platinum Seal of Transparency

Additional Features: Ask the MD, podcasts and webinars, videos, patient stories, many patient assistance programs, links to additional information, clinical trial enrollment

Languages: English, Spanish

Contact: 800-708-7644 or email form found on the Contact Us page

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