Highly Recommended

World Federation of Hemophilia

The World Federation of Hemophilia (WFH) website has comprehensive and informative content on a wide range of bleeding disorders. There is a plethora of materials that can be downloaded and resources to access to help patients and families manage and live with a bleeding disorder. This site is highly recommended as the most extensive source of information on all types of bleeding disorders.

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Review Date: 9/20/2019

Scoring

Ease of Use

The materials on WFH are informative for patients and caretakers alike. All content here is highly readable and easy to locate.

Visual Design

Nothing special or especially offenseive about the site's design. It may not be appealing, but visitors shouldn't let that stop them from visiting.

Quality

The WFA website is one of the most detailed available on the topic of bleeding disorders. The pages are brief, but taken together, along with links to additional information, the site provides an all-inclusive primer to the essential aspects of hemophilia and related conditions, including preventing bleeding, genetics, carrier states, rare clotting factor deficiencies, and inherited platelet disorders. And the site's collection of 300+ additional resources give visitors the opportunity to dive deep into topics of their choice.

Credibility

No topics have authors listed, but there is a clearly identified Education Advisory Committee. Unfortunately, the qualifications and specific credentials are not provided. Otherwise the health content on WFA can be trusted as reliable and highly credible.

Pros

  1. Clear topics are organized well and can be expanded for easy browsing
  2. Readable font and fast-loading pages
  3. Offers more than surface-level information, discussing treatment, patient barriers and challenges, severity, monitoring outcomes, and more
  4. Expert committees generate content including a dental committee, musculoskeletal committee, psychosocial committee, etc.

Cons

  1. Lack of identified topic authors and their qualifications limits the credibility of that information
  2. One topic was updated May 2018, all others were updated in between May 2016 and May 2012

Profile

Sponsors / Affiliations: World Federation of Hemophilia, an international 501(c)(3) nonprofit organization established in 1963

Accreditations: None

Additional Features: Many downloadable brochures and fact sheets, extensive news coverage, many links to resources, educational games, assessment tools, video library

Languages: English, French, Spanish, Chinese, Russian, Arabic, Japanese

Contact: wfh@wfh.org