AboutKidsHealth is an inconsistent online resource for children's health information. Users will find over 2,000 medically reviewed articles on common diseases and conditions, pregnancy, child development, nutrition, parenting techniques, medications, tests and procedures and more. Other features, such as detailed information about some diseases and links to disease-specific resources and organizations enhance the experience. The site is recommend for credible information for children & teens and those who give care for them, but the content is erratic.
The World Federation of Hemophilia (WFH) website has comprehensive and informative content on a wide range of bleeding disorders. There is a plethora of materials that can be downloaded and resources to access to help patients and families manage and live with a bleeding disorder. This site is highly recommended as the most extensive source of information on all types of bleeding disorders.
The National Hemophilia Foundation (NHF) is an effective source of basic information and handouts about bleeding disorders like hemophilias A and B, von Willebrand disease, etc. The resources available through the website are valuable and comprehensive. Although much of the information lacks listed authors, references, or dating, the site is a recommended source of health information that will benefit patients and caregivers coping with a bleeding disorder.
The Children's Liver Disease Foundation provides important medical information for children and young adults with various liver diseases and their families. The site also offers support services in the UK related to childhood liver disease. Users can access helpful tutorials, animations, downloadable publications, journal articles, and even a mobile app. This website is a recommended source of reliable, timely information that provides a good overall understanding about 13 pediatric liver diseases.
The Michael J. Fox Foundation is highly recommended as a first-stop resource for Parkinson's disease information, including detailed information about medications used for treatment. The site's educational focus is wide-ranging and authoritative, providing materials that are easy to understand for many audiences. The breadth of material here makes it so that visitors can learn about this disease not only from a biological perspective, but also the many ways Parkinson's impacts a patient's daily life.
The Parkinson's Foundation helps general readers get a basic understanding of Parkinson's disease symptoms, diagnosis, treatment, and caregiving. There is also up to date information about research advances and tools to find help for patients and families. This site is highly recommended as a great introductory source of accurate, user-friendly, and visually appealing medical information about this this movement disorder.
The Hemophilia Foundation of America (HFA) provides basic information about how to diagnose, treat, manage, and live with a bleeding disorder, including how they affect different populations. There is a wealth of information about a wide variety of resources and assistance programs, such as clinical trials, financial assistance, advocacy organizations, and more. This website is highly recommended as an introductory source of information for those interested in learning about bleeding disorders and as a great resource for patients and caregivers about available programs.
The National Organization for Rare Disorders (NORD) is a patient advocacy group serving individuals with rare diseases and related organizations. The website is full of information and resources for over 12,000 rare disorders. This highly recommended website includes a wealth of accurate and detailed information and materials for patients and families, advocacy organizations, industry members, clinicians and researchers, and aspiring volunteers.
D.A.I.L.Y. gives patients interactive and informative, but superficial, content about living with type 2 diabetes. The question/answer format can be difficult to manipulate and makes browsing time-consuming, the site is recommended as a practical, but limited guide for diabetes management information. The site is most useful for it's fact sheets and links to Hormone Health Network.
Diabetes Self-Management publishes detailed, easy-to-read articles about various forms of diabetes organized into 4 sections, general information about diabetes, managing diabetes, nutrition & exercise, and diabetes recipes. The articles and videos featured on the website cover many medical and lifestyle aspects of diabetes, with useful tips on diet, glucose control, and complication prevention. The site is recommended for authoritative, reliable health information for people with diabetes who want to know more about managing their diabetes.